Pernicious Anaemia Survey

A chance to influence future research into Pernicious Anaemia

The Pernicious Anaemia Society has formed a Priority Setting Partnership with the James Lind Alliance to identify ten uncertainties relating to the diagnosis and treatment of Autoimmune Pernicious Anaemia and, consequentlyVitamin B12 Deficiency.

The partnership has developed a survey that has been specifically designed to identify theses uncertainties relating to the diagnosis and treatment of Pernicious Anaemia. ACB are supporting the project to ensure as many different perspectives as possible are represented in the survey responses.

Vitamin B12 Deficiency is common in the western world, and the most common cause of that deficiency is Pernicious Anaemia. We now know that too many patients are waiting too long for a B12 Deficiency to be identified,and many are given no explanation for that deficiency because they are not diagnosed as having Pernicious Anaemia. It is envisaged that these uncertainties will form the basis of much needed research programmes, not only into Pernicious Anaemia in particular but also into B12 Deficiency in general.

We would like to invite you to take the survey so that you can help identify what uncertainties in the diagnosis and treatment of Pernicious Anaemia you think need to be addressed. It will only take around ten minutes to complete though you can take as long as you wish. We also encourage you to circulate the survey to your colleagues and the people you work with who have Pernicious Anaemia. This is an opportunity for you to lend your own personal/professional expertise and have your say in setting Pernicious Anaemia research priorities. The survey can be completed here.